I was not aware of what to expect. The noise beating into my ears was very loud and almost unbearable. I became agitated and nervous and voiced my concern but was informed those noises were necessary. I don't know how, I fear I might develope deafness in both ears. I am already slightly deaf in the left ear. Had some tests, and informed them I was hearing a pulse beat in my left ear. Hence the ENT specialist ordered the MRI. I was apprehensive at first, not knowing what to expect, but went through it so the doctor could diagnose the problem I was injected with the contrast dye, and was dizzy when it was finally over. I was told I must drink plenty of fluids due to the dye. I felt out of sorts and dizzy most of the time and now several hours later about 81/2 hours, can feel the taste of the dye in my breath, and some shortness of breath, and I am afraid. I am already a heart patient, and am worried about my heart. Will someone please reassure me it will pass. Thank you. lenar114
I had my MRI today and I have to admit that it went better than I expected. The techs were very reassuring and treated me very well. The provided me with ear plugs and the noise was still pretty loud. I'm assuming the previous person did not receive ear plugs, which may have helped. I closed my eyes the entire time and just thought about other things. I was already tired going into it so maybe that helped. I also was told I'd have to drink plenty of fluids to flush the dye out--I'm not experiencing any problems because of it. In fact, I came back to work after the procedure. Yes, it's a bit nerve-wracking, but it went well for me. Sorry to hear about your problems, Lena.
Does a pituitary MRI also show the whole brain?
I went in for a pituitary gland MRI ordered by my Endo and
They didn't find a tumor, but I'm still having symptoms and was just wondering if he also looked at other parts of my brain and not just that one spot? Any info would be helpful.
It depends on how the facility did the test. When doing a pituitary MRI, some facilities add extra sets of images (aka sequences) which image the whole brain. You'll need to review the MRI with your doctor or call the facility to find out.
HI, like robert, I too have pituitary symptoms but my prolactin is normal.. ut leakin from breasts.. have a brain injury from yrs ago.. been tx for headaches.. also, think I have csf fluid leak from my nose..read can be for yrs also.. how do I find someone to order this MRI? or a comprehensive look at my symptoms? Ohio... and Robert, look at adrenals, do 24 hr urine.. can get that ordered + pay outside lab cost about 140.oo thanks
I had trouble at the end of labor as my daughter got stuck directly following the delivery I had a tubal ligation and that went wrong with my blood pressure dropping so low the head of the operating table was positioned to touch the floor that made it difficult for the Dr. to preform the tubal, it took him 3 hours. I have never the same for over 22 years and was diagnosed with chronic fatigue syndrome. I was never tested for damage to the endocrine system but my symptoms are the same and I take blood pressure medication daily to increase it, I have hypotension and milky discharge from the breast. It's abnormal and I'd have brain surgery if they needed to get to the pituiytary, thats how bad my symptoms have been over all these years.
I may have some helpful info.My husband had a csf leak, I took him to the skull institute in houston, tx at UT. They were outstanding he seen an ent and a neurosurgeon, Dr. P. Roc Chen, he is the best on earth. It is worth the trip.
Good Luck to you guys, I too may have to have an MRI on pituitary gland. Houston here I come.
I had a pituitary MRI done this past Monday. I am claustrophobic and the noise even with the ear plugs was pretty scary, but I made it through it. If I have to go to anymore I may need to be medicated because I almost freaked out a few times. However, I got copies of my MRI and it was scans of the whole brain. Pretty cool to look at. I can see the tumor pretty good. I hope the meds they prescribe to shrink it will work and my symptoms go away.
I had an appointment set up for me to have a MRI of my pituitary at a local hospital. I was very nervous and it seemed warm to me in the room. It was all business to the workers there. I laid on the table and was given earplugs. A grilled helmet was placed on my head where one of the grills was in direct path of my nose causing the warm air to be directed back into my face. Cloth was placed at my ears to help hold my head still. I was handed a squeeze bulb in case I panicked being told it would stop the procedure. I am a good sized man of large build and when the table was sliding into the tube I felt it push in on my shoulders and then my elbows were pushed into my sides making it difficult to breath. The whole time I am thinking I am supposed to be in here for a long period of time and I felt like I couldn’t even take a deep breath. The warm air didn’t make it any better. When the clacking sounds started I squeezed the bulb like I was sending Morse code asking to be taken out of there. I thought I was going to be stuck when my elbows hung up on the ridge of the entrance. I told her it was too tight of a fit. I was later sent to a facility that had a scanner for larger people and it was more wide open and a lot less noisy, no ear plugs. My only problem there was trying to stay awake. The people were wonderful. There is also a new contrast they used on me that did not make me warm nor noticed any discoloring.
MRI of my brain found a pituitary tumor.I had surgery but the tumor had invaded my right sinus cavity. While waiting for gamma knife radiation,the tumor grew back and I now need surgery again.I'm not sure if I should have the surgery or wait it out.I'm 56 years old with hepatitis "C" and there is a chance the hep "C" could kill me first. I'm asking if people think I should put off the surgery and take what ever comes my way. I'm very worried about getting surgery again because the first time I got blood clots in both my lungs and all most died from the complications. I've had a filter put in to help protect my lungs from clots but what about my brain. I rather be dead than not able to care for myself because of a stroke. Thank you for any advice.
I had an MRI pituitary scan done and the when I got up from the table the radiologist asked me when I was seeing the consultant.When I saw them the week after they said we would like to talk to you about your scan.I had a small microadenoma but also found a lump inside my tongue.Got referred to an ENT surgeon who said we think you have a lingual thyroid. I then had to have a 123 Iodine full body scan. Went back for those results and got told it's not a lingual thyroid we have to do a tongue biopsy under general anaesthetic.....what a nightmare. I then had that done but had to wait four weeks for it and a further two weeks for the results which turned out to be a build up of capilleries....thank goodness.The MRI scan was ok and if anybody has to have one please don't worry.Just imagine lying on a beach in the Maldives.It's better than a tongue biopsy!!!
went for my peturiy mri yesterday i feel it was very inpersnol i was not given a gown and had to take under ware of in front of steff in mri room i had to get dressed in toilets mri was ok but just felt i was a number and not a person who is not very well thats why i was there after all hope test comes back not to bad will have to wait .
just want to ask if how much is the doctor's fee of a neuro surgeon specialist? Thanks
I had an MRI/MRA on 2-3 and they saw a large mass at my pituitary gland. I have to have another MRi on 2-15. I've been having severe headaches,unable to sleep for any length of time. Very tired, sick on stomach, black shadows and spots infront of my eyes. Has anyone every had any of these symptons and could this be a pituitary glad tumor? I have had 5 spine surgerys in the last 5 years and I have a implanted pain pump due to nerve damage in my right leg. I live in severe pain everyday of my life and having severe headaches all the time is getting the best of me.
i had a mri on my pituitary glan ,it was normal,howeveri still do not have an answer to why my t count is below 75,no i do not have hiv,my only symptom is low energy,fatigue ,less sex drive. what should i do next?
@ Daniel Houston.Have you had your thyroid gland tested.This can cause a low T count and loss of libido.Good luck
I loved my MRI. I had foam ear plugs and the grill face helmet. I'm not too big, so it didn't cause any trouble for me. I've had such bad head pain that the loud clicking and zapping sounds felt like they were able to deeply itch spots in my head that I couldn't reach with my fingers. I eventually fell asleep during it and was sad when they woke me up because I never sleep anymore from the pain in my head. It was so nice to finally fall asleep. The radiologist told me I have a 2.2 cm tumor growing on my pit gland and that is why my IGF-1 is so high. (IGF-1 is what increases growth hormone.) I did indeed love the MRI experience though. It was relaxing to me. Maybe this tumor has made my brain like weird things. I don't know.
hi, I am due to have a MRI tomorrow, and am extremely scared, not about the MRI, as this I believe is necessary...but by what 'they' will find. I was referred by a optometrist, as she suspects I have pituitary tumour, as I have recently been diagosed with field vision defect amongst other issues. Has any one had field vision defects that have not been due to pituitary? Thanks in advance :) x
I had an MRI of brain due to lose of hearing in my left ear and 2 wks later detached retina in my left eye. I was told by ENT md to f/u with PCP which I did and he said MRI didn't show it. I received copies of my records and in it MRI results which said: 5mm ovoid hyperintensity is noted along the inferior surface of he pituitary gland, more inferior than expected for posterior pituitary bright spot. There is also round upward bowing of the anterior aspect of the Pituitary gland, greatest vertical height 9mm on coronal imaging. Recommended pituitary MRI with dynamic imaging might be helpful in assessing for microadenoma. Anyone out there can give me any information please do so. I need to know if I should go back to PCP and tell him I saw results
is an MRI OF THE PITUITARY the same as an MRI OF THE BRAIN and what ways are they different?
Hi, I have had lots of MRI's for a pituitary tumour, Im due to have another one next month. I think people make then out to be far worse than they are. Just relax and go to sleep. Yes the noise is very bad but you do get used to it in there.
I had my MRI done 4 June 2013 of my pituitary gland and I'm a little concerned about tight spaces but I made it thru. I had an my first MRI done in January 2011 of my back and it was horrible which made me think I wasn't gonna make it thru this one, but as long as the tech. talks and tells me how much longer it was ok. I was given foam ear plugs for this one and first I wasn't gonna use them, I thought it was for old whinny people that bitch and moan about every little thing, but I'm glad I used them. Its pretty loud in their and I was in their 45 plus minutes, I didn't sit completely still so she had to redo some, and if I didn't wear them I would not have made it I think I'd have gone nuts. But I find out 6 June 2013 if I have tumor or what is causing dizzy spells, nausea, headaches, no sex drive, very low and dropping testosterone, etc., just to many things to list, and what we're gonna do. It may sound sick but I'm hoping they find something, going to all these doctors and all these tests is worst then a job. I go to allot of different docs cause of multiple problems like my back which I just had surgery on & if they at least find something here & fix it it'll help me feel better and give me some life back. I'll let y'all know if they find anything Thurs.
God bless y'all and lead the way don't follow. 🇺🇸😏
My daughter had test done because she started her period at an early age. They ran tests and did a MRI. The letter we received said everything was fine. Then when I took her back to the same doctor this year the doctor said she had found a black spot in my daughters pituitary gland in the MRI. Should I be worried? Shouldn't they have told me when they found it?
My husband has had several CT's and MRI's that have shown nothing. Psychological testing has shown normal as well. He just had an MRA and MRI 3 days ago based on Brain-mapping, that showed a spot on his brain worthy of the MRA. Instead of the normal week wait for results, we got a call 22 hours later saying it showed a small pituitary cyst or tumor. Being military, we don't always get the best care. They want to do an MRI of his pituitary gland next, which is odd to me if all MRI and CT's have shown nothing. What should we be asking for and what specialist should we ask to see? His symptoms started in 2007, 1week after a grenade explosion in Iraq that left him unconscious. His Neuro symptoms are: short and long term memory loss, blackouts of up to 17 hours, balance, urinating a lot (even when he's had little to drink, waking 4-5 times a night to urinate), irritability, fatigue, shaking his head he feels like he can feel his brain moving and has excruciating pain, sudden sharp stabbing headaches that leave him unable to do anything except hold his head and scream in pain, and much more. He is in Wounded Warriors and his Medical Officer is willing to do anything and everything it takes to get him help, to include anything I find I can bring to him and he'll look it over and let us decide if we want to do that. I just don't know what to do next and who he should see, as well as if this is something we really need to worry about.
@Sandra, what was the outcome for you? I am having my second MRI tomorrow and I have most of your symptoms.
Have high level of T3 cells so MRI of pit is recommended. No other symptoms.Wonder what the high T3 cells might mean?
Have not actually had my MRI - it still has to be scheduler and the scheduler is out on sick leave at the moment. I called my Internal Med Doc and discussed it with him and at this point I guess the MRI will just be to RO or as they say Rule Out a growth of some kind. Keep me posted on your outcome, please.
1-'14. I had a 3rd.surgery last week to 'reduce' size of my Pituitary tumor so "CyberKnife" could be done. If not reduced, Surgeon suggests Cranitomy approach next... Any experience with having 4 surgeries to "just reduce size", which sounds temporary ..with radiation to follow?
Anyone actually have the entire tumor removed successfully? How about after CyberKnife or other?
Thank you for responses...I sympathize with you all. Pv
I had a pituitary adenoma removed in 2007. The neurosurgeon removed it by going in through my nose. Only one night in the neuro ICU and checking to make sure no spinal fluid leak, then he let me chose to go home, or stay one night. I went home and returned to work in 5 weeks. The recovery was not that bad, but I absolutely hated being in the neuro ICU. There are some very sick patients in there, and I really wanted out of there because I wasn't anywhere close to being that sick, and I didn't want the nurses to spend any time on me. Afterwards, you just feel like you have a severe sinus infection and head cold that won't go away for about 2 weeks, then it begins to subside. I had to take steroids and pain medicine for a few weeks, but had a full recovery. Now, a little over 6 years later, I am experiencing the exact same symptoms I was before. Headache, right eye pain, swelling and peripheral vision loss, fatigue, no appetite, chills, low libido.......but this time the pain seems to be worse, but that may be psychological because I absolutely DO NOT want to have surgery again. Over the last 6 years I have developed 4 different tumors in my body, all were benign, thank Heavens. One was on my ovary and grew to about 6 lbs. before I even really noticed it (I thought I was constipated all the time). I also had a benign tumor on/around my appendix, which became necrotic, and it looked like appendicitis on the scan, so I had emergency surgery for appendectomy, which turned out wasn't even appendicitis. The next year I went to doctor because I thought I had gall stones, severe pain in my stomach, had tests and that turned out to be a peptic ulcer. So with all of this, I am thinking that I may have some kind of pre-disposition (genetic) problem for developing tumors. I am 52, and at the age of 32 had a partial hysterctomy because of chronic fibroid tumors and ovarian cysts rupturing 4 times. The thing that makes me mad is that neither the neurosurgeon nor the neurologist told me that I should have been seeing an endocrinologist, never even referred me to an endo. I went to my optomotrist because of the eye pain about 2 weeks ago, and he is the one that actually told me that since I had a pituitary tumor in the past, that I was at-risk for developing another one, and that I should have been having an MRI once every 2 years, and I should have been going to an endocrinologist since the first pituitary tumor so that they could be checking my pituitary function with lab tests. I was pissed! Why didn't my neurologit or neurosurgeon give me this tidbit of information? I have never been seen by an endo. I was under the impression that...since it was benign and the neurosurgeon took it out, that it was taken care of. Well, apparently that isn't the case. I have an MRI scheduled in 3 days, and if the adenoma grew back, I am really going to be angry, especially if it could have been prevented. It is just going to be hard to accept, but I guess I will have to buck up and do whatever they say. But this time, I will be sure to go to an endo, and work hard to find a neuroendocrinologist. I am not going to mess around this time. There is no excuse, I live in Houston, where I have access to some of the best doctors and hospitals in the world.
I too live in Houston. In October my neurologist found a lesion on my pituitary gland. I have had 2 MRI's, a skull x-ray, full skeletal survey, Lumbar puncture and many blood, urine tests. I was referred to Dr. Yoshur at Baylor Pituitary Clinic. He has been studying my case and consulting with colleagues nationwide. I am now part of a study to determine the cause of my/similar lesions. I have yet to receive a diagnosis. The doctors are "watching" my tumor. Like you, I had previous issues with cysts in my ovaries which I had removed. I have an endocrinologist but she has not been very responsive or involved. I am 31 and my lesion will not easily be removed as you described. Please let me know how your case transpires. Also, I recommend the Pituitary Center at Baylor if you aren't already working with someone there. The entire team of doctors and nurses have been so good to me. I hope that you too can work with doctors and nurses that are looking at all of the options to best treat you.
I had my entire Pituitary Gland removed in 1981, due to a huge Pituitary Tumor. It was too big to be taken out by way of my nose, so my head was cut in a horseshoe type shape along my hair line.
As a result of the surgery, I ended up with water diabetes, but it's kept under control with DDAVP pills.
The surgery and recuperation did not hurt. In time, the incision was hardly noticeable and was hidden by my hair.
Except for having to take cortef, synthroid, DDAVP, HGH, provera and estrace, I am fine. I get tired quickly, but that's about it.
Please do not get scared of a pituitary tumor. Like I said, my entire pituitary was removed and I am happy and healthy.
I am sure that the surgical procedure is much more advanced than it was over 30 years ago, too.
Please be careful about reading comments from other people, because they can scare you to death.
The worst part for me were the blood tests & the IV, because my veins are difficult and I have a needle phobia.
Good Luck, (It's not that bad!)
Thank you for responding. Since I last posted, I have been really very sick. I even suffered a seizure. My symptoms got so very bad that I could hardly hold my head up. My headache and eye pain where so bad that I could not work. My neck was stiff and I was nauseated and dizzy. The pituitary adenoma had come back, but it is only 4 mm, so not to be alarmed. What is alarming, however, is that now I have an "empty sella", and some other markings of an apparent cerebral spinal fluid leak. My diagnosis: intracranial hypotension. Apparently, the seal from the pituitary surgery 7 years ago is leaking spinal fluid and causing all kinds of neurological problems. I was put on immediate bed rest and told to lie flat to see if it would heal on its on. Well it didn't. I have had to go to an opthalmologist because of loss of vision, an ENT because spinal fluid was dripping out of my nose, and change neurologist because the 1st one told me to go to a psychiatrist because I was depressed. When I went to get the second opinion, he knew immediately what it was by asking this question, "does your headache get better when you lie down"? I said "yes". He asked me to lie down and then he timed it, and asked me, is it better now, repeatedly, and the pain eased up the longer I lay flat. So he knew it was a "postural" headache. So he was right. I had a myleogram and cistogram, but they could not locate exactly where the leak is coming from, but I was able to collect some of the spinal fluid for them in a tube which confirmed. I had what they call a "blood patch" which helped some, but I will probably need another one. I went ahead and told the doctor I wanted to try to work, so he released me to work and today is my first day back, but it is really rough going. I work at an intermediate school, and I am just praying that I can make it until the end of the year, but it is really rough. I think I am going to need another patch really soon. My doctor will not prescribe any pain medication at all. He says that if he starts me on pain meds, it will just begin a vicious cycle,and that if I lie down, I won't have pain. So I have to learn another way to manage the pain. Tough Love!
All I can say is, think very carefully before you agree to neurosurgery. The risk of getting a leak later is real and it can be permanently disabling if they cannot pinpoint exactly where it is coming from so that they can repair it.
About 5-6 years ago I went the ER for my first ocular migraine. I had a CT scan and an MRI. From what I remember they told my mom I had a cloud near my pituitary gland...didn't think anything of it at the time. I don't know what it means..I've been having headaches for years. I have daily headaches and a migraine every month or so. I'm wondering if these two things are related in any way??
I am Dawne Kirkwood and I am a twice brain tumor survivor, both pituitary. I have had prolactin secreting and non prolactin secreting.One presented itself with headaches and the other with pressure behind my left eye. I am open to any questions. I hope it helps someone. https://www.youtube.com/watch?v=Cw_XVMKnDjg